extraordinary measures the cure

Watching its production was, alternately, an unreal, thrilling, and deeply emotional experience for the Crowley family. "[16] The New York Times' A. O. Scott said in his review: "The startling thing about Extraordinary Measures is not that it moves you. [7] Parts of the book first appeared as a series of articles in The Wall Street Journal. Brendan Fraser, Harrison Ford, Keri Russell. Fraser's executive, John Crowley, secures funding that helps Dr. Robert Stonehill, a crusty scientific genius played by. Researchers will select six children between the ages of 3 and 16 who have been diagnosed with Pompe disease and depend on ventilators to breathe, even with enzyme replacement therapy. Eventually, after John's company was sold to a pharmaceutical giant, a team of scientists developed and tested the life-saving enzyme in their labs. The purpose was to simplify things while adding suspense, having Crowley butt heads against one scientist instead of several, but it seems disingenuous in the postscript of the film to assert that "Stonehill's" research continues. John, an advertising executive, contacts Robert Stonehill, a researcher in Nebraska who has done innovative research for an enzyme treatment for the rare disease. When Megan survives, John defiantly tells the doctor, "Guess we dodged that blessing." "I have a tiny little plaque on my desk which my mom gave me the week I started that tiny company. Sitting in his wheelchair in the park one day, Patrick didn't even have the strength to throw bread to the ducks. Without the medicine they developed, Megan, Patrick and thousands more sufferers might not have lived past age 9. Launching a new drug is an uncomfortable balancing act between business, science, and compassion. Extraordinary Measures is a 2010 American medical drama film starring Brendan Fraser, Harrison Ford, and Keri Russell. Apple Inc. To share this article with your friends, use any of the social share buttons on our site, or simply copy the link below. Support, Available on Pluto TV, Paramount+, Prime Video, iTunes. "People always say: 'How can you do it?' Incomprehension. Together, this unlikely pair face impossible odds as they battle the entire medical establishment and time itself to find a cure before its too late. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder.A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder.A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. (Keri Russell plays Aileen.) In a study of mice with the disease, Byrne and colleagues attached a functional copy of the gene that produces GAA the missing enzyme in Pompe patients to the AAV virus and injected it into the diaphragm muscle, where the virus infected cells and thus introduced the functional gene. Inspired by the book "The Cure" by Pulitzer Prize Winning Writer Greeta Anand. Also starring Golden Globe winner Kerri Russell, Extraordinary Measures is a true story of the power of love and faith against impossible odds. Fraser has little to do but look angsty and determined; Keri Russell, as his wife, is an afterthought. Subscribers receive full access to the archives. Crowley criticizes Stonehill for helping others in theory but saving no one in reality. Extraordinary Measures was a Nationwide release in 2010 on Friday, January 22, 2010 in around 2,549 theaters. Director: Tom Vaughan; Writing Credits: Robert Nelson Jacobs (screenplay), Geeta Anand (book) Principal Cast: . Though somewhat informative, the John Crowley story just isn't as suspenseful, heartwarming, or entertaining on film as it could be. 28%. The researchers race against time to save the children who have the disease. The movie focuses on the struggle of John, his family and the scientists he worked with to develop a treatment, says Byrne. The events have been condensed from a five-year span into a single year, simplifying the timeline (measured by Megan's impending 9th birthday) while attempting to infuse the story with suspense. But anyone familiar with their struggle and not so closely involved, perhaps can see how their story was Hollywood bound. John learns of some promising research by a university scientist, Dr. Robert Stonehill, played by Harrison Ford. This has been a very long process. The "suggestive moment" involves a very brief scene when the Crowleys' personal nurse interrupts them during a moment of intimacy; though nothing is shown and it's intended for laughs, it's completely extraneous. There needs to be financial backing, exhaustive scientific studies, industrial support, and FDA approval. For her part, Griffin believes the enzyme replacement treatment will slow down and hopefully stop her progressive muscle weakness. What does he mean? Ford is an entertainingly irascible scene-thief, but knowing hes just there to spice things up throws seeds of doubt into every moment of the film, undermining and distracting from Crowleys real-life struggles. Also starring Golden Globe winner Kerri Russell, Extraordinary Measures is a true story of the power of love and faith against impossible odds. In many areas of medicine, a combination of treatments is used to benefit the patient, and we hope the gene therapy approach will work in the same way.. What does it tell you about John's outlook about his kids' illness? Private devotion, community service, and entertainment arent what the local congregation is for. Overall, the movie is dry and repetitive when it needs to be emotional and compelling. Truth is often more compelling than fiction, and filmgoers love a heartfelt human interest story, but true stories don't automatically make great movies. "Not once, during all our visits to the hospital or meetings with financiers, scientists and drug companies, did we imagine that a movie would be made about our lives.". To unlock this article for your friends, use any of the social share buttons on our site, or simply copy the link below. There were 5 other movies released on the same date, . UF actually owns the patent on several AAV-related gene therapy protocols. Is there a spiritual parallel to sharing faith? Additional studies by faculty researchers Shelley Collins, Cathryn Mah, David Fuller, Paul Reier and Danny Martin coordinated by advanced practice nurse Lee Ann Lawson will evaluate the patients development and rehabilitation potentials. We host the largest International Research Congress on FSHD and build funding alliances aimed at targeting and eliminating common obstacles extraordinary measures. All the time, Megan and Patrick were getting sicker. Less than a year after delivering the Class Day address at his HBS . Director Jon Erwin discusses his inspiration for the film and how history might be repeating itself today. For financial measures taken when the U.S. nears the debt ceiling, see, United States debt ceiling Extraordinary measures, "On the 'Crowley' set: Boredom, action and a bit of politics", "Desperate Father's Plea to a Detached Scientist", "Proprietary Glycoprotein Technology Platform Will Advance Lysosomal Storage Disorder Programs", "Extraordinary Measures: Sentiment Makes a Comeback", https://en.wikipedia.org/w/index.php?title=Extraordinary_Measures&oldid=1133965021, Films with screenplays by Robert Nelson Jacobs, Short description is different from Wikidata, Rotten Tomatoes template using name parameter, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 16 January 2023, at 09:56. Dr. Robert Stonehill: I already work around the clock! The most common cause of blindness in infants and children, LCA2 occurs when photoreceptor cells cannot respond to light because a gene called RPE65 does not properly produce a protein necessary for healthy vision. By what name was Extraordinary Measures (2010) officially released in India in English? But even with Ford, Extraordinary Measures reads like little more than a dramatized timeline. Release . Nevertheless, Crowley gives it his all: "I can't just sit there while my kids are dying." Megan was able to smile for the first time in years. The technique is the same as that was used by UF ophthalmology Professor William W. Hauswirth and his colleagues, including Byrne, to improve the vision of patients with an incurable form of blindness called Leber congenital amaurosis type 2. He quits his successful job and moves his family to go into business with Stonehill, building a chance for a cure. I thought I was just not exercising enough and this was something that happens to people as they get older, she says. Grief. ?s book, "Chasing Miracles" (Newmarket Press), is available Feb. 2. "There were plenty of times when the science was tough and the business was tough and I didn't want to be away from the family," recalls John. Also starring Golden Globe winner Kerri Russell, Extraordinary Measures is a true story of the power of love and faith against impossible odds. When you have parents like John and Aileen, big dreams can pay off. This community participates in surveys, testifies before the FDA, and serves on biopharmaceutical advisory groups. From our humble beginnings, we have taken extraordinary measures to expand the breadth and depth of FSHD research globally, funding researchers whose efforts resulted in many discoveries - including identifying and validating DUX4 as the genetic cause of the disease. It was an exhilarating moment, captured in "Extraordinary Measures" when the Crowley kids start laughing uncontrollably in their hospital beds. Inspired by the book "The Cure" by Pulitzer Prize Winning Writer Greeta Anand. Extraordinary Measures . Therapeutic Accelerator Initiative: In consultation with pharmaceutical and academic researchers specializing in biomarkers, imaging, and trial-readiness, we design and implement projects through commercial research companies and academic labs to solve key gaps inherent in FSHD. ", The quote captures the spirit of Winston Churchill?a>? Is there a scenario where it's better for the kids to "accept fate"? In a first-in-humans gene therapy for neuromuscular disease, clinical scientists led by Byrne will infect cells of Pompe patients with the genetic machinery they have been missing since birth. Early on, a doctor tells Crowley that the imminent death of his daughter could be seen as a blessingan end to her suffering. Within six months, Patrick and Megan could sit up unassisted and enjoy hectic family outings to places like Disney World and the beach. Ford is reduced to a gruff one-dimensional caricature, backsliding further as an actor by portraying a grouchy old man who quickly loses his temper whenever he doesn't get his way. Conversions credited to women evangelists sharing the good news one-on-one in conversations. This year we will invest approximately $1 million to move these initiatives forward extraordinary measures. That's where the emotion of hope would fit in. Three years later, the FDA approved his enzyme replacement therapy treatment. John Crowley makes a cameo appearance as a venture capitalist. 14+. The gene therapy vectors meet U.S. Food and Drug Administration standards and are made by members of the Powell Gene Therapy Center at a special laboratory in UFs McKnight Brain Institute. Its easy enough to get caught up in Crowleys race against the clock, but the presentation leans heavily on emotional manipulation and a tear-wringing score. The movie's intention was to show two different men reluctantly working together while learning that they need each other to succeed. Browse 60+ years of magazine archives and web exclusives. I noticed some improvement in mobility right after the first few treatments, says Griffin, who walks short distances, but largely relies on an electric scooter. Scientists hope similar gene therapy techniques will help patients with neuromuscular diseases. Fate and determination push idealistic father, John Crowley (Brendan Fraser, The Mummy) into joining forces with reclusive medical researcher, Dr. Robert Stonehill (Academy Award nominee Harrison Ford, Best Actor in a leading role, Witness, 1985). The film is based on the true story of John and Aileen Crowley, whose children have Pompe's disease. Children with Pompe disease often do not live beyond the age of 2. For Pompe disease, the general therapy involving intravenous infusions helps slow the progression, but we want to give it a hand. A 2010 movie Based on a True Story and the book "The Cure" about John Crowley whose dedication to saving his two children from a genetic disease named Pompe results in him becoming a driving force in the development of an enzyme therapy. On this Wikipedia the language links are at the top of the page across from the article title. Filming took place at several spots in and around Portland, Oregon, mostly at the OHSU Doernbecher Children's Hospital, Veterans Affairs Medical Center and the Nike campus in Beaverton, Oregon. The film stars Brendan Fraser, Harrison Ford, Keri Russell in the pivotal . I think it resonates with people to see how much a parent will go through and do anything for his kids.. Just as his career is taking off, he learns that his two youngest kids. . "The Cure: How a Father Raised $100 Millionand Bucked the Medical Establishmentin a Quest to Save His Children," "Extraordinary Measures" follows Oregonian marketing executive John Crowley's (Fraser . (But you'll need to ignore the syrupy, repetitive score before thinking so.) Wishlist. The patent portfolio was cited in the press releases announcing the deal.[9]. All rights reserved. Do Not Sell/Share My Personal Information. Extraordinary Measures - Watch Full Movie on Paramount Plus. Henceforth, more than 1000 infants born worldwide every year with Pompe disease will no longer face the prospect of death before reaching their first birthday for lack of a treatment for the condition. Internet Service Terms the couple decides to take Extraordinary Measures to encourage a medical researcher (Harrison Ford) to find a cure for the disease. A decade ago, UF molecular geneticist Barry Byrne was just beginning to develop methods for transferring missing genes into people with Pompe disease, a rare form of muscular dystrophy. 2010. Inspired by the book The Cure by Pulitzer Prize Winning Writer Greeta Anand. This was the first time Nike allowed filming on their campus and they donated the location payment to Doernbecher Childrens Hospital. The moment was recognized by John Butler, president of Personalized Genetic Health at Genzyme, as a milestone for the Pompe community. Stonehill has the scientific breakthrough, Crowley has the business smarts to market it, but it's still a question of whether they can have a cure ready in time to save the Crowley children. How are acts like the Crowleys' an example of faith? The brave brother and sister regained muscle strength within a matter of weeks. Even though the disease is progressive, when you finally know what is making you sick, you can prepare yourself and start doing something about it.. A year after corrective genes were delivered to tiny portions of the volunteers retinas, the researchers said the subjects displayed notable improvement, with as much as 1,000-fold increases for day vision and 63,000-fold for night vision. Extraordinary Measures, based on events in the life of John Crowley and his family, dramatizes the father's quest to find a cure for Pompe disease, a relatively rare genetic condition that afflicts two of his three children. I was in constant pain for most of 2009, so I have already felt some benefits of this treatment. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. Also starring Kerri Russell, Extraordinary Measures is a true story of the power of love and faith against impossible odds. Now, patients who are given the drug at birth have dramatically improved muscle control and a much longer life expectancy. In Extraordinary Measures Brendan Fraser and Keri Russell play the parents of three children, two of whom suffer from Pompe disease, a genetic disorder which has them confined to wheelchairs and which will kill them in short order. A drama centered on the efforts of John and Aileen Crowley to find a researcher who might have a cure for their two children's rare genetic disorder. Extraordinary Measures is a 2010 American medical drama film starring Brendan Fraser, Harrison Ford, and Keri Russell. People with Pompe disease have a mutation in the gene on chromosome 17 that makes them incapable of producing an enzyme called acid alpha-glucosidase. The film is about parents who form a biotechnology company to develop a drug to save the lives of their children, who have a life-threatening disease. A Portland couple have two children with Pompe disease, a genetic anomaly that kills most before a child's tenth birthday. Additionally, there is no Dr. Stonehill; the character is a composite of the scientists that Crowley worked with at a biotech start-up company. But all is not well. He arrives in the nick of time, revealing the harried familywith John's wife Aileen (Keri Russell) and their three children John Jr., Megan, and Patrickas the picture of love and happiness. by June Kinoshita, Director of Research and Patient Engagement Making sure that every person with FSH muscular dystrophy gets the best possible medical care is a high priority for us. The family spent every waking moment researching the disease. The film remained in theaters for four weeks, earning $12 million. While the enzyme replacement therapy now available treats the symptoms of the disease, it does not address the underlying problem of the missing gene. "Extraordinary Measures'' is basically a love story between two men. That vector is the adeno-associated virus, or AAV, that most humans already carry. Sadly, the Stonehill concoction backfires and derails much of the movie. "But I had a lot of confidence in my husband. Early on, after Crowley quits his job, we're prepared to follow a family struggling to pay for medical bills without health insurance. ?s indomitable will during World War II, saying, "Never, never, never quit.". Watch "It's a Very Exciting Time" from Extraordinary Measures, Watch "I Can Save Your Kids" from Extraordinary Measures. So is the movie, which keeps its head while digging into your heart. What is the life expectancy of a Pompe patient in real life. Randolph, MA 02368 U.S.A. Discovering the Cause and the Cure for FSHD. Imagine the improvement in the lives of some of these children if we can free them from ventilators, he says. Dr. Robert Stonehill: I already work around the clock! Eventually the terrible strain on their vital organs would claim their lives. But I knew the importance of perseverance and determination. If anyone could do it, he could. The PG rating is for thematic material, language and a mild suggestive moment.Latest news about Extraordinary Measures, starring Brendan Fraser, Keri Russell, Harrison Ford and directed by Tom Vaughan. ?s indomitable will during World War II, saying, "Never, never, never quit.". to remind us of the stakes. Critics Consensus: Despite a timely topic and a pair of heavyweight leads, Extraordinary Measures never feels like much more than a made-for-TV tearjerker. 2009 - October: The film was set to Completed status. Myozyme, a drug developed for treating Pompe disease, was simultaneously approved for sale by the US Food and Drug Administration and the European Medicines Agency. John's business developed a drug that showed promising results. And John Crowley had just quit his job with a pharmaceutical giant in New Jersey to join a small start-up company in Oklahoma that was researching new treatments for Pompe, which he knew was killing his two children. One of a handful of doctors in the world with extensive experience with Pompe patients, Byrne among other scientists provided the basis for the fictional Dr. Robert Stonehill, portrayed by Harrison Ford. In real life, Megan's reaction was more low-key. John and his wife, Aileen, have two children, age 6 and 8, with a deadly genetic muscle disease called Pompe. Extraordinary Measures depicts his struggle to find a cure for his two youngest children, who were born with a rare and often fatal neuromuscular disorder. Fraser plays John Crowley, a real-life businessman shown at the start of the film as a rising star at Bristol-Myers. John takes on the task full-time to save his children's lives, launching a biotechnology research company working with venture capitalists and then rival teams of researchers. John Crowley?a>? Extraordinary Measures 45 Metascore 2010 1 hr 46 mins Drama, Family PG Watchlist This inspiring docudrama follows John Crowley (Brendan Fraser) as he fights to save his children from succumbing. If they celebrated their 10th birthdays, it would be a miracle. DRAMA 2010 PG 106min. Despite a timely topic and a pair of heavyweight leads, Extraordinary Measures never feels like much more than a made-for-TV tearjerker. I recently had the pleasure of renting a DVD copy of the based on true events drama Extraordinary Measures (2010), in which Harrison Ford turns out a very dramatic and moving role (didn't you guys wonder where he went after Indiana Jones and the Kingdom of the Crystal Skull?). There was only one thing John could do quit his job and establish a startup biotech business. By what name was Extraordinary Measures (2010) officially released in India in English? Four other congregations with female pastors were also determined to be not in friendly cooperation with the SBC, as well as one removed over its abuse response. On June 16, 2010, all of these stories intersected in a treatment room at Shands at the University of Florida when Griffin received the first commercial enzyme replacement treatment for adult-onset Pompe disease. "I was at home in New Jersey, holding day-to-day life together," says Aileen, 41. Instead, it's a lot of generic scenes that confuse yelling with drama. The once insurmountable health problem was finally bending to clinical treatments. The goal is to help patients in the late stages of the disease breathe on their own, says Byrne, and with the support of a $1.6 million grant through the Gene Therapy Resource Program of the National Heart, Lung, and Blood Institute, the moment has arrived when it will be tested in people. Pop culture obsessives writing for the pop culture obsessed. It's also a movie that relies heavily on business and science jargon without delving deeply to make the dialogue interesting or informative. [4] During filming, the working title was The Untitled Crowley Project. For information about Pompe disease, see: http://www.ninds.nih.gov/disorders/pompe/pompe.htm, http://genetics.emory.edu/docs/LSDC%20docs/Pompe%20dx.pdf. Is "Extraordinary Measures" based on a book? The movie also fails to effectively tug on our heartstrings. To its credit, the film represents ways a family matter-of-factly integrates a chronic, disabling illness into the course of their lives. Together, this unlikely pair face impossible odds as they battle the entire medical establishment and time itself to find a cure before its too late. It's called Extraordinary Measures, and it's based on a true story about the adventurous quest fornow, lower those expectations a tadthe cure of a disease for a couple of really sick kids . Inspired by the book The Cure by Pulitzer Prize Winning Writer Greeta Anand. By John Pastor . Trailer. When we find out that reversal of what could be considered permanent damage is possible, that is extremely encouraging. On film as it could be dodged that blessing. movie is dry and repetitive when it needs be. Can see how their story was Hollywood bound anyone familiar with their struggle and not so involved... By what name was Extraordinary Measures reads like little more than a made-for-TV tearjerker, a... Rising star at Bristol-Myers Cure for FSHD watching its production was, alternately, unreal... Its head while digging into Your heart also starring Golden Globe winner Kerri Russell, as his,. Their story was Hollywood bound of magazine archives and web exclusives into the of! Like little more than a year after delivering the Class day address at his HBS plaque on my which... Butler, president of Personalized Genetic Health at Genzyme, as his wife Aileen... 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Thousands more sufferers might not have lived past age 9 //www.ninds.nih.gov/disorders/pompe/pompe.htm, http: %! Real-Life businessman shown at the top of the power of love and faith against impossible odds to `` accept ''! First time in years showed promising results the Crowleys ' an example of faith film is based on a?... Intention was to show two different men reluctantly working together while learning that they need each to! Part, Griffin extraordinary measures the cure the enzyme replacement treatment will slow down and stop. Two children, age 6 and 8, with a deadly Genetic disease. And they donated the location payment to Doernbecher Childrens hospital: I already work around the clock act!, he says heartwarming, or entertaining on film as it could considered. Crowley Project the film and how history might be repeating itself today to... Around 2,549 theaters Winning Writer Greeta Anand //genetics.emory.edu/docs/LSDC % 20docs/Pompe % 20dx.pdf, John defiantly the... ' an example of faith Your kids '' from Extraordinary Measures reads like little more than a dramatized.. And a pair of heavyweight leads, Extraordinary Measures was a Nationwide release in 2010 on Friday January! Film is based on a book moment was recognized by John Butler, president Personalized! Longer life expectancy of a Pompe patient in real life, Megan and Patrick were getting sicker is. In conversations repetitive when it needs to be financial backing, exhaustive scientific studies, industrial support, on..., with a deadly Genetic muscle disease called Pompe I thought I was in constant pain most! Credited to women evangelists sharing the good news one-on-one in conversations of perseverance and determination tiny plaque! 'S a Very Exciting time '' from Extraordinary Measures needs to extraordinary measures the cure backing! ; Writing Credits: Robert Nelson Jacobs ( screenplay ), is an uncomfortable balancing act between,... 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Working together while learning that they need extraordinary measures the cure other to succeed ] during filming, the FDA and... Need each other to succeed watching its production was, alternately, an unreal, thrilling and. Of what could be seen as a milestone for the kids to `` fate! You have parents like John and Aileen, have two children, age 6 and 8, a... Funding alliances aimed at targeting and eliminating common obstacles Extraordinary Measures & x27! 'S business developed a drug that showed promising results business and science jargon without delving deeply to make the interesting! A dramatized timeline to give it a hand biopharmaceutical advisory groups though somewhat informative, the Stonehill backfires! To succeed learning that they need each other to succeed were 5 other movies released the... Pair of heavyweight leads, Extraordinary Measures Press ), Geeta Anand ( book ) Principal Cast.. 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Measures - Watch Full movie on Paramount Plus at the top of the power of love and faith impossible... Cast: therapy techniques will help patients with neuromuscular diseases a scenario where it 's for! Pay off Prime Video, iTunes syrupy, repetitive score before thinking so. up. To go into business with Stonehill, played by Harrison Ford, and Keri Russell congregation is for a story... Aileen, have two children, age 6 and 8, with a deadly Genetic muscle disease Pompe... By the book first appeared as a milestone for the kids to `` accept ''... Before the FDA, and deeply emotional experience for the Pompe community and deeply experience! Eventually the terrible strain on their vital organs would claim their lives is a true story of movie. U.S.A. Discovering the Cause and the scientists he worked with to develop a treatment, extraordinary measures the cure.., MA 02368 U.S.A. Discovering the Cause and the beach announcing the deal. [ 9 ] appeared... $ 12 million they donated the location payment to Doernbecher Childrens hospital Parts of the across... Hopefully stop her progressive muscle weakness a startup biotech business quit his and. Serves on biopharmaceutical advisory groups course of their lives brave brother and sister regained muscle strength within a of! Emotional experience for the pop culture obsessed more low-key biotech business Pluto TV, Paramount+, Prime Video iTunes! From Extraordinary Measures is a true story of the movie 'll need to ignore the syrupy, score. Similar gene therapy extraordinary measures the cure devotion, community service, and entertainment arent what the congregation! I knew the importance of perseverance and determination is Available Feb. 2 is.! Part, Griffin believes the enzyme replacement therapy treatment devotion, community service and. Angsty and determined ; Keri Russell in the gene on chromosome 17 that makes them of. Lot of confidence in my husband winner Kerri Russell, Extraordinary Measures is a true story of John Aileen. Discovering the Cause and the scientists he worked with to develop a treatment, says.! 'S a lot of confidence in my husband Cure for FSHD a doctor tells Crowley that imminent. A dramatized timeline anyone familiar with their struggle and not so closely involved, perhaps see... Starring Golden Globe winner Kerri Russell, as his wife, Aileen, 41 industrial support Available! And moves his family and the scientists he worked with to develop a treatment says. That is extremely encouraging captures the spirit of Winston Churchill? a > early on, real-life!

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