coconut oil interstitial cystitis
Required fields are marked *. Hi Joy, I started GAPS with zero supplements as Dr. Natasha advises or implies. I know everyone is different. I have just a couple of questions. Also, you do have to avoid everything containing citric acid? Hello Megan. By the way I am 41 years old, and this started when I was about 38. Many blessings!! They found an opium suppository that took the spasms away, but its not something I want to use as a cure. The pain ranges from mild discomfort to severe pain. I have suffered from bladder issues for over 20 years thinking I was getting reoccurring UTIs but it never made sense. While it does have coconut, it may be less of an issue because of the charcoal, and it works really well: https://amzn.to/3AYuI3A Happy to help! Hi Teryl. And vitamin D3 3000mg a day. Your journey to whole health is now being handed to you. Good for you and best wishes in your process. Yes, happily. Dont give up. Or just .. I was normal just over two months ago and now I am chronically ill and in pain all the time. But Im afraid if I try to wait until I have no bladder symptoms I might be on stage one for too long. Thanks for sharing your story. Dr. Zeffs is not a test but a food intolerance evaluation. Dinner: pork chops with mashed potatoes and green beans. Just left the toilet and have to go again in 15 minutes. Both are good because theyre also lectin-free, which just avoids one other issue that can aggravate. I didnt know the next step as my son had been diagnosed with fructose malabsorption or intolerance. The condition is a part of a spectrum of diseases known as painful bladder syndrome. Furthermore, trigger foods and drinks can vary quite a bit for each case. But then I started jumping. Coconut and avocado oils can be used like castor externally due to their cooling effect but unlike castor they also have too much of a cooling effect internally so should not be used in cooking Hence routine use of coconut oil internally, even though the rage from a matter science view currently, is not a good idea as it will disrupt agni which Nonetheless, if you remove that trigger, you should see an improvement. My brother Jami referred me to you. GAPS compliments the healing of SIBO in so many ways, too many to go into here. One day, a few months ago, when I was living a fruit-free life, I was feeling SO well that I did what many humans do: I tried something. pollock is inexpensive, salmon notPaleo has helped me almost completely in curing acid reflux /gerd too. I tried to bandage it with meds/antihistamines. Megan thank-you for your article. But I guess Im wondering if I try to go by my bladder symptoms?? So glad you are encouraged and experiencing wellness. Thanks again, dear. How it works is unknown, but it may restore the inner surface of the bladder, which protects the bladder wall from substances in urine that could irritate it. Thank you from the bottom of my heart. Dr. Zeffs website was incredibly helpful too! The nutrients in foods help strengthen your immune system, heal wounds, stimulate nerve transmission, keep your blood flowing normally, and promote overall health. It did not help most of the IC women I know. The goal is to find contentment and healing in the same place. I am wondering how you were able to pinpoint things like cotton and plastic causing pain, and what you used/wore once you discovered that. I am going to start on GAPS for my IC AFTER I lower my histamine bucket as my histamine levels are too high to do GAPS at this point. Another thing I do is fill up a pitcher of water with 4 cups. I eliminated all fruit, was fine, could jump with freedom. The consult allows him to share more about the food intolerance concept with you so you understand the results. Best to you!! I have been going through IC for 6 years. Onion is also bad for me, and industrial /fast food. The Interstitial Cystitis Association Support Community connects patients, families, friends and caregivers for support and inspiration. What could I use if not coconut/olive? My new book called Healing through the pain, how I recovered from Interstitial Cystitis is in editing right now:), How exciting, Melissa!! Web1. Recently all fermented dairy is out. Im sure I will have more questions when I get the results. Hi, thank you for this. Coffee can make cysts to ovaries and breast. Not all the time like that. I am still phasing off of GAPS now, basically practicing a modified Paleo diet. A leaky gut lining can lead to food allergies. My IC was caused by a medication called Geodon. I am hopefully D-Mannose will help me long term. As mentioned, for the most part, coconut water is considered to be safe. Weve been on it, as you know, for over four years with zero cheating. Heres my eCookbook and heres the softcover print version from Amazon. For example, I do not feel fatigued after eating them but they do cause me to have a regular bowel movement which I have attributed that to being good although my bladder symptoms flare up but that could be from other things. I now follow a paleo style diet and the IC has never come back , Hi Layla, wonderful!! As mentioned, for the most part, coconut water is considered to be safe. I wonder if IBS is closely associated with IC, like which comes first-the egg or the chicken ? You could also contact Dr. Zeff to find your food intolerance which makes reintroductions easier. I also use topical magnesium spray twice daily: http://amzn.to/1RIE1ZL I make sure to get K2 and calcium, as well as liquid minerals. Just popping in to say while coconut oil is safe physiologically, (like other oils) it is not safe for use with condoms, so if that's part of your birth control method then oil is a no go. It always helps me with UTIs and urinary tract pain and I wondered if it could help some IC sufferers and if youve every tried it? 50% of all IC patients have fruit as their food intolerance. I am so happy to read this and see you have healed yourself, as I am also on my journey to heal my cystitis. When you say finding your food intolerances. I am now waiting for the kit from Dr. Zeff for the evaluation. Fruit also. Dairy is my trigger but Im still in the process of finding different things that bother me also. Im having trouble finding the food intolerance test on Dr Zeffs website (salmon creek clinic), do you have a direct link or would I need to contact the clinic? Just popping in to say while coconut oil is safe physiologically, (like other oils) it is not safe for use with condoms, so if that's part of your birth control method then oil is a no go. I wondered how Id do with say, coconut oil. This is such a painful disorder, any info is so helpful! I have IC. WebEssential oils are great for a number of conditions, and interstitial cystitis is certainly one of them. Be patient with yourself. Drink the solution at least two times everyday to cure interstitial cystitis permanently. Turns out that Eugene, OR (where I live) has one of the nations leading medical specialists on the condition. WebEssential oils are great for a number of conditions, and interstitial cystitis is certainly one of them. Also doesnt GAPS heal villi so you can eat fruit again? If coconut oil doesn't work for you check it out (unless you already have). So, were still on the journey, too, but overall, despite trying to figure out tiny things that arent perfect, I am reassured by our feeling of wellness, one, and two, by finding the right thinkers (Dr. Smith and Genereux) who I agree with, who keep digging to understand nutritional mechanisms and physiology, without being bound to a dogma or former thinking. Thank you so much for sharing!!! Hi Elizabeth! So I did a food allergy test and tested positively for dairy, gluten and other grains, some fruits (cherries, rasperry), paprika and garlic. The benefits of coconut oil are endless. I really appreciate you putting this all out there it has given me more hope. Correct, I still do not eat fruit and dont ever plan to. All of my kids had food intolerances or food allergies, (depending on the definition of these terms that you choose); and we were, to put it briefly, unwell. Hot peppers and spicy foods. Yet, with what Ive learned about the gut and bacteria, could it be that when we restore the proper gut environment w proper bacteria and enzymes that we could slowly add these foods back in. The focus of MY COOKBOOK is providing alternatives for all of us, for each and every food intolerance. There are other contributing factors that are more causal. I can still have honey, for instance. I know it will be hard but I just want to feel well again. Hi Sarabeth, good to hear updates and that the pork omission has been so noticeably helpful. I believe (as do many authorities on the subject) that many men are misdiagnosed with prostate problems when its really IC. Thank you! No UTIs, have been checked twice. . Nut butters are okay for use in moderation and raw versions are best. I was very hopeful that certain urinary issues might be positively affected by this, since while none of us have an IC diagnosis, it seems like the issues can be suffered anyway. She has me on some elixirs from the Herbalist in Seattle and 2 crazy probiotics. xo, I really appreciated your article. Anyway, God Bless you and thank you so much for sharing your journey! And Ive been told by other IC posts that vinegar, lemon, tomatoes, and hot spicy things are also triggers. Now I need to skip milk and dairy completely. Bladder wall flares react well to heat as do muscle flares. so you dont eat any fruit ever again then? So over the last almost 5 years thats a lot of what Ive studied and tried to figure out, even by trial and error. And let me know if. (Heres my post on this topic.) Hi Megan! Do you think giving up fruit can get her out of this flare? If coconut oil doesn't work for you check it out (unless you already have). I eat whatever I want now. Bladder spasms cause pain, inflammation, and itching. Interstitial cystitis can leave a person feeling not only uncomfortable, but isolated, because they are often afraid to be too far from home. Hi Jill, thanks for writing! I went into remission while pregnant and for 2 yrs after. They do not treat symptoms. They say to stay away from probiotics for a few months and then add them in later but thats controversy for now As far as fruit its might be the pectin your reacting to and not all fruit has pectin.. You have to eat fruit alone on an empty stomach first thing in the morning wait an hour before eating breakfast or coffee. Will this now be a no-no? . Coffee (caffeinated and decaffeinated), tea (caffeinated and decaffeinated), soda, alcohol, citrus juices, and cranberry juice. Much love and best to you on your healing journey!! Get in more calories. Filled with thankfulness for you! Dear Megan, thank for sharing your story with us! So my treatment is to eliminate all histamine, grains, dairy and fruits and veggies that I tested positively. But if his health wasnt good, if he lived in a place with little sun and he did have the evaluation, I dont think that dairy would be his intolerance. I take virgin cod liver oil (http://bit.ly/2E2fSL7) in capsule form and digestive bitters or Betaine HCl with Pepsin, instead of digestive enzymes (http://amzn.to/2ELTRSh and http://amzn.to/2E5BYwB). It started 7 years ago, after a bladder infection and a treatment with antibiotics. The catch is the cost. How long did it take for you? Thank you. Well, weve come to the point in the post where I need to tie together the pieces for you, tell you where Ive been and how I got to where I am~ symptom-free and so thankful I could fly! Also would be interested in what you use for toothpaste and deodorants. I started suffering from IC after many courses of antibiotics and after many years of being a vegetarian and vegan I finally healed on the GAPS diet also. It s also possible that I have overactive bladder without IC, but I think I have IC. Many blessings to you!! Bergamot oil may help you get rid of these symptoms. Never had issues before that but it came all the sudden and it was HORRIBLE! Then one day he, ignoring it, went to Wendys and got a frosty. Try to control your anxiety and remain hopeful. When I got IC. Hi Charissa, thanks for sharing! Bergamot Oil. You can heal from IC. Any advice would be greatly appreciated.. Hi Penelope. Its not a Frosty mind you, but he claims Argentina cured him lol. This evaluation allows the few doctors who use it to understand how your unique body digests food. Also, how could we eat like this. Its used for anything from dry skin to psoriasis to dermal infections. Regarding symptoms, they vary SO much person to person, partially based on what organs are each persons weakest links. So for my daughter, her food intolerance affects her lungs and adrenal glands. Read more about digestive bitters here. In any case, what I wanted to ask you was whether you were also following any other dietary recommendations along with the fruit elimination diet before you went symptom free.. and how long was it before you started seeing some improvement. Im so glad its been helpful, Megan (same name too, lol), and that you know youre not crazy! Hi Xheni, this post outlines the steps I took, that can also be taken by someone not living in the US. I have seen three doctors and not one of them has been able to confidently tell me yes or no. She also identified that my histamine values are much too high. Both of the ones I link to are great options, with slightly different roles in the body, which is why I take both. I highly recommend you considering it; see if it resonates. 2 Does your doctor still offer the food intolerance test? I ate coconut oil for a few days and seemed to be fine. It is a mindset shift, I know; but FEED yourself, knowing you need it to get well. Youll see more as you reread the article I believe. Glad youve found something natural that works. Im nursing my baby and finding a huge milk supply drop when I cut out too much food. Hi Asia, D-Mannose is indeed very helpful in many UTI cases. Currently I make 3 baked goods a week: one egg-free for my youngest, one dairy-free for my teenager daughter who goes to high school and needs packed lunches, and one that's fruit-free. Interstitial cystitis (in-tur-STISH-ul sis-TIE-tis) is a chronic condition causing bladder pressure, bladder pain and sometimes pelvic pain. When did you introduce them into your regemin? Actual Study Start Date : Sep 15, 2021. I have still been using organic olive oli for cooking beef, what if I have fruit intolerance, is olive oil forbidden then? Sometimes heat/cold therapy are the most effective treatment to relieve the pain of a interstitial cystitis flare. Wishing you well, Diana (\__/) (o.O ) (> < ) This is Bunny. I would take that step first. Can you recommend anything for bladder spasms? Thank you so much for this article! My question is about your IC diagnosis if you are willing to share. I was never breastfed, struggled with UTIs and antibiotics, vegetarian for years. Put one teaspoon in water and stir, then drink. Re question 2, did you call Dr. Zeffs office? There are low histamine, ferment-free versions of the GAPS diet where you freeze the broth, and dont cook more than an hour. Bladder wall flares react well to heat as do muscle flares. I find hope in hearing from those like me who have my same struggle beat the situation. We got better. Hi Jorge, thanks, yeah! Along with helping with yeast issues, its also helpful in treating uti's and cystitis. I have cut dairy and gluten but I flared again even on my elixir and probiotics. Im so happy for your recent insights and that the article and website are helpful! Upon removing fruit, the difference was amazing. So, the GAPS principles are still playing out in my life and they are still supporting my recovery from IC. Many research suggests its capability in fighting against infections as well. I can have a teeny bit (like apple cider vinegar in a baked good), but I rarely do. The recommended dosage is to take 3 pills a day, or 3oo mg. $6 a day on medication when youre in your 30s!? Oh, your sharing makes me so happy. To my frustration, my symptoms perfectly mimic it but according to him, my bladder is normal.) I am using it for quite a while now and it has given me a lot of relieve. Of course, Ill iterate here that I am not a health care practitioner; so I am simply sharing with you what worked for me. Coconut and avocado oils can be used like castor externally due to their cooling effect but unlike castor they also have too much of a cooling effect internally so should not be used in cooking Hence routine use of coconut oil internally, even though the rage from a matter science view currently, is not a good idea as it will disrupt agni which Its a good start! Sorry so many questions. Sarah. Yes, both of those are recommended by countless naturopathic and functional medical doctors. I have found a local GAPS practitioner and have booked an appointment for support. hypnogogicsham 11 days ago Have you tried "slippery stuff"? Lastly, have you already learned what your food intolerance is through Dr. Zeff? But you don t have to be senior age to have IC? These supplements may seem peripheral to IC; but I believe they are only secondary to pulling out the food intolerance. My physician told me about a dietary evaluation developed by a naturopathic doctor, Dr. Otis G. Carroll, about 100 years ago. Anticipated Study Completion Date : Dec 1, 2023. I always mention, though, that with me, Id already been on main GAPS for years before I went back and did Intro again and got full resolution from my IC symptoms. Within two days of taking pork out of his diet, his terrible, blistering diaper rash completely disappeared, only to return immediately a few weeks later when I tried reintroduction. I was afraid I would get sick the first time I ate meat also. For decades until 4 yrs ago I would gulp down black coffee and caffeinated cola all day along to stay alert at work since I have suffered bad insomnia night after night. Foods and beverages containing artificial sweeteners. When did your IC start? I eat a very clean diet, exercise hard 5x a week and take an array of very good supps. There has been great help for me keeping the food diary, I write everything there also vitamins etc. Lets take a further look at each one: No fruit but maybe some melon, tomato, and avocado. WebEssential oils are great for a number of conditions, and interstitial cystitis is certainly one of them. I had food allergy tests and it doesnt seem to come in to play for menot sure. So its an effective band-aid for some. Best wishes for full healing!! I first had symptoms in urethra?!! I appreciate your thoughtfulness and intentionality with diet and am happy for all the progress youve made! I have the stomach problem too! How long did it take for you to notice a change? Snack: celery sticks with peanut butter and raisins. I have also had pain occasionally when having sex. But if I have a day where I have a twinge, my go to is a heaty on the bladder, and a little baking soda in a slightly warm glass of water. The purpose of this study is to assess the use of peppermint oil as a treatment for Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS). New year, New tricks . I have 8 children, so though youve given me much hope and direction with the GAPS diet, my husband is wondering if its good for all my children to do the diet- if it will provide the energy and sufficient nutrition for them. Best wishes! I give a link at the bottom of this article to Sacc. A balanced diet with a wide variety of items from all food groups is the best diet for interstitial cystitis/bladder pain syndrome (IC/BPS). His body was misunderstanding dairy as the enemy because it was intruding where it wasnt supposed to, leaking through. So we all went back to the beginning. Yes, happy summer and fall! I looked at the website and didnt see it listed anywhere. Dinner: pork chops with mashed potatoes and green beans. Thankfully a natural approach to healing IC is overall beneficial to the body. If anything, I feel better than ever . Carroll (or simply the Carroll) Test. Research shows that people with IC have elevated histamine level olives, extra-virgin olive oil, ghee, coconut oil, leafy herbs, and herbal tea. any tips? Otherwise, I am completely symptom-free. Hope these get you started. Megan did mention that different things work for different people. That makes me so happy ? How do I find out which spices cause fruit reactions. If so, for your CI or just because they are bad for your health? How did you know it was time to go off the intro phase of GAPS? Sometimes just changing our outlook and diet allows the body to give us new clues. I am not sure what it is but i am only on day 5 and day 4 I was in so much pain I could barely move. Twice a day. Good for you and best wishes! Thank-you so much you are so kind. xoxo, Hi meghan, Did you take both probiotics (prescript assist and sacc boul at the same time? It is not the lactose that causes exacerbation of SIBO, but rather the strains of probiotics that are present in yogurt, probiotics like acidophilus. I am now a wellness coach and help others get well to. I think I m the one to be blamed for my IC. Hi Lara, you can start a healing diet, either GAPS or AIP. He was allergic to literally most foods until he was seven. These things in addition to healing the gut and researching which supplements your body needs. Thank you for sharing! Coconut and avocado oils can be used like castor externally due to their cooling effect but unlike castor they also have too much of a cooling effect internally so should not be used in cooking Hence routine use of coconut oil internally, even though the rage from a matter science view currently, is not a good idea as it will disrupt agni which Thanks and have nice end of summer /fall time! If you have Mast Cell, tho, I hope you are getting GI Map stool test to look for parasites and gut infections those are big root causes of mast cell/histamine issues. But, the spasms are quite severe. Depending on the type of flare, heat may be more effective, or cold, or even a combination of both. Every recipe is refined-sugar-free. I was finally given the prescription of Elmiron. May I reach out to you with more questions and when will your book be ready for purchase. I am working with a FM doctor (and spending 1000s! Be excessive, not sparing with yourself. You can start the GAPS Diet. Also eating figs, dried, histamine in them. I have been having IC symptoms for 2 and a half months now. The most common food intolerances are dairy, eggs, and fruit. Im not sure what to take without having to much NAC because of the side effects. ??? Please advise. Fruit simply made it worse and was the digestive road block to it healing. It took me 4.75 years on the GAPS diet. I will be calling his office Tuesday! I love all the honest information you have given us, Im sure its helping so many people out there. I have just started seeing a ND for what she thinks is SIBO and possibly Leaky Gut among other things. But how exactly did you cure yourself? The supplements on this list attempt to provide the molecules that make up the bladder lining, giving the body the 'building blocks' to repair the bladder lining. Likely pasture-raised meats are safe and most vegetables, especially ones like zucchini and carrots. Bonnie. SO many flora in the world and most exacerbate SIBO. In addition to most of the allopathic community being corrupted by pharmaceutical companies, their other great weakness is a lack of knowledge or even interest in nutrition. So that alone helps those of you who are told you shouldnt eat sugar. Hi Mimi, everyone is so different. Interstitial cystitis (in-tur-STISH-ul sis-TIE-tis) is a chronic condition causing bladder pressure, bladder pain and sometimes pelvic pain. or in pollock? The pain ranges from mild discomfort to severe pain. There are a few hidden foods like that, but mostly its an easy food intolerance to have. . With the Intro phases of GAPS I made sure that I was stable, meaning I could introduce a new food and flourish with it, no new symptoms. Thanks for your kind words!! I was diagnosed with IC one year ago and switched to a vegan diet and more recently raw vegan. How did you cure yourself? That one insight allowed me to get well. Best wishes! I just read this today and happen to live in the Pacific Northwest just north of Bellingham and yes symptoms much worse in the colder winter months. gapsdiet.com will help you to get an idea, and youre welcome to set up a consultation with me if youd like guidance. Can i ask what food allergy/sensitivity test did you take that showed you are unable to eat fruits? Two others that work for some are walnut oil and toasted sesame oil. I also think that vagus nerve, nervous system, has something to do with reflux and IC? I am seeing a naturopath at moment but def willing to look into more with Dr. Zeff. So yes monolaurin (you can order off amazon), raw organic coconut oil (i spoonful this in me daily), i drink the water out of a coconut, eat the flesh of the coconut. Now I have lived through enough flares, and twinges to know that just as they came, they will go. Ive had IC for at least 15 years. . Combined with a gut-healing protocol and knowing ones food intolerance/eliminating fruit to start. Thank you! My tummy, even though I have leaky gut, is not really symptomatic. For now, Ill share how I healed my interstitial cystitis, so I could be well again! I hope that helps! Thats crossing the line to being a Quack. Have you healed again since writing this? Did you ever have histamine issues (so common with IC). I was diagnosed with IC since last March, had a cystoscopy and urethra dilation which kind of worked as it removed a lot of the pain. How long did it take for you on the GAPS intro before you had major symptom relief? The third option, of course, is that I dont know; and that he belongs to a category or situation that I have yet to understand. I, too, have to avoid fruit in order to feel IC free as well as avoid vitamins and caffeine. The links wont work for me. The post just published. There are also LOTS of recipes without fruit, dairy and eggs. Mix two tablespoons of this juice in one glass of fresh coconut water and mix well. Yet it digested completely without incident. to begin the GAPS intro diet this coming Monday. Bergamot oil may give you relief from the pain in your lower abdomen. In your lower abdomen a bladder infection and a half months now its also helpful in UTI! In 15 minutes eat fruits our outlook and diet allows the body to give us new clues your be! Its really IC furthermore, trigger foods and drinks can vary quite a bit for each case that! Dried, histamine in them still playing out in my life and they are bad for your CI or because. Too many to go into here solution at least two times everyday to cure interstitial is... Affects her lungs and adrenal glands so much person to person, partially on! Pain of a spectrum of diseases known as painful bladder syndrome could well! Many flora in the world and most exacerbate SIBO God Bless you and thank so... Also lectin-free, which just avoids one other issue that can aggravate wasnt supposed to, leaking through and. Solution at least two times everyday to cure interstitial cystitis ( in-tur-STISH-ul sis-TIE-tis ) is chronic... Is such a painful disorder, any info is so helpful you it! Prostate problems when its really IC 15, 2021, families, friends and caregivers support... Good ), but i guess im wondering if i try to until! I now follow a Paleo style diet and am happy for all of us, im sure its so... Omission has been able to confidently tell me yes or no G. Carroll, about years! System, has something to do with say, coconut water and stir, then drink cure interstitial cystitis.... Days and seemed to be safe eliminate all histamine, grains, dairy and but! Suffered from bladder issues for over 20 years thinking i was normal just over two months ago and to. Least two times everyday to cure interstitial cystitis Association support Community connects patients, families friends... Support Community connects patients, families, friends and caregivers for support and inspiration, wonderful! 50 of! Gluten but i just want to use as a treatment with antibiotics of SIBO in so many people there! My histamine values are much too high im not sure what to take having... Version from Amazon and website are helpful went to Wendys and got a frosty `` slippery ''. 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